88 degrees with a light breeze

This year was weird for me because I started longing for cold weather and dreaming of a little snow about a month ago. That all ended when my friend in the northwest posted pictures of her kids in coats and hats and gloves and then my kids came inside from playing in the dirt like this and I remembered how much I so love living in Florida.

Maggie is wearing a jacket in the picture but it was 88 degrees outside and the only reason she was wearing it was because I had just gotten the girls’ fall clothing out and she was all about her new pink jacket. 

We are near record highs this week and I’m trying to find time each day to soak up some sun because it’ll be in the 70’s this weekend. Boo to that.   

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Maggie has a sweet tooth.

Maggie recently turned 3 and I asked her this morning what she wanted to be when she grew up.  She responded that she didn’t need to grow up because all she wants to do is trick-or-treat.

And I’ve discovered that sweets are a powerful motivator for this one. I’ll have to be careful not to abuse that because this kid is smart and would absolutely end up with a mouthful of cavities and by the time she is 4.

Mom, look at how I can sit on this basketball. This is great so take a picture!

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Filed under: Maggie

31 for 21 Day 31. I can’t believe I did it!

Sam informed me this morning that Gabe needs a stylist.  He repeated this several times until I realized Gabe had asked him to see if I had a stylus he could use.

By noon I was already asked if we could eat the Halloween candy at least 20 times and when can I wear that cream puff?

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Walmart exploded in my bedroom.

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Lanie got a new hairstyle.

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Actually, I just spiked her already obvious and totally natural mohawk.

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Lucy, who has dressed as Rapunzel for 3 years straight, put on her dress today and I noticed it was almost too small.  I told her she might want to think about a new costume for next year and she replied, Can I just get a bigger Rapunzel dress so I can still be Rapunzel every year?

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And the adult came over to spend some time with the kids trick-or-treating.  She was dressed as a biker chick or some other leather-clad wild child person.

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I swear I see her more now than I did before she moved out 3 weeks ago.

And I was trying to upload a video of Lanie laughing but it’s not working so I’ll try to figure it out tomorrow because it’s late and I’ve eaten 4 Twix bars and I’m just about crashing.

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Filed under: 31 for 21Down syndromeLanie

31 for 21 Day 30.  Busy day.

Today was jam packed with busy.  We went to church, had a reformation feast with food and games, came home to get ready for our weekly Sunday dinner that has turned into quite a big deal because a bunch of my adult kids’ friends have found out that we cook a bunch of food on Sundays and now they sneak in each week to enjoy some of our home cookin’.

Sunday’s have become quite enjoyable. And crowded.

Because it this I wasn’t able to do much picture taking with Lanie but did get this one of her being happy.


She’s done quite a bit more smiling for the camera lately and I’m loving it.

Tomorrow is the last day of October. Hopefully I don’t forget to post my last 31 for 21 challenge post.

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31 for 21 Day 29. The exercise ball.

So here it is. A few pictures of Lanie doing some physical therapy on her big pink exercise ball.

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She’ll use the exercise ball for a lot of things.  It’ll help build her core muscles for more controlled sitting up and crawling. For right now we are just having her lay on her belly while we tilt the ball all 4 directions. I try to position her arms under her, kind of like she’s doing a pushup.

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She was very happy to cooperate today and I suspect it’s because I put her contacts back in her eyes.

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Ben usually helps me with Lanie’s therapy but he was out back helping Rabbit with something so Matthew took a short break from painting to work with her so I could take some pictures.

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And it was fun and she was happy and we had a really good time.

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We have other items we use or have used for her physical therapy too. A Sit-Me-Up floor seat, which she hated but was really helpful in working her neck muscles; a bumbo, which we use daily; and a good dense quilt, which we use every time Lanie is on the floor (Thank you Nona for your incredible quilting talent and generosity).

I still plan to take some pictures of everything with a run down of how we use it all but for now the exercise ball will have to be enough.

 

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Filed under: 31 for 21Down syndromeLaniephysical therapy

31 for 21 Day 28. I tried.

I’ve been trying to get some pictures of Lanie doing some of her therapy exercises and whatnot but she has been absolutely uncooperative.  She’s had to wear her glasses much more often lately because she’s been congested and her eyes have been weepy.  This has caused her to be on some crazy emotional rollercoaster and this is a visual rundown of how today looked for her.


The day started off pretty good.  We went to Gabe’s cello lesson. Lanie always likes hearing the music but her eyes were really runny and that’s when I decided to keep her in glasses for the day.

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Later on in the day I tried to get some pictures of her in her Bumbo. She was okay with it at first…
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But quickly tired of playing with us.

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Shortly after that she started to get frustrated with her glasses.

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And then frustration turned to desperation.

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Until she managed to quickly yank them off of her face when I wasn’t looking.

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And was satisfied.

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Shortly after that she ate and took a short nap until I packed her into her car seat for a fun trip to Lowe’s.

I carried her around the store in her Ergo carrier and she was very happy about everything. Even her glasses didn’t seem to bother her at all and there were many giggles.  She absolutely loves being in the carrier.

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And she laughed herself to sleep.

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I think Lanie gets more attention than any of my other children when I take her out in public. It could be the glasses, but she isn’t always wearing them. Or it could be that she is just seriously adorable. Maybe both.

I’m guessing that the physical therapy post will have to wait until Lanie is feeling better and back in her contacts.

Also, and I don’t want to speak too soon, I cannot even believe that I’ve made it this far into 31 for 21.  I only have 3 days left. I’m so happy that I stuck with it.

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Filed under: 31 for 21baby wears glassescongenital cataractsDown syndromeLanie

31 for 21 Day 27. Not what I had planned.

But when does anything really go as planned, right?

So here’s a picture of Lanie who has a little congestion and was not really in the mood to be put down much today after her therapy appointment.

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Lots of thumb sucking going on this afternoon.

I’m still trying to get a physical therapy post written up. Tomorrow maybe?

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Filed under: 31 for 21Down syndromeLanie

31 for 21 Day 26. Therapy.

Tomorrow is Lanie’s first actual physical therapy appointment.  She’s been evaluated and it has taken weeks to have that evaluation approved by the therapist and Lanie’s pediatrician and her insurance to get her into regular physical therapy.


Lanie is very close to sitting up some days, and other days she goes boneless every time I try to work with her.  I’m hoping her therapist will give me some tips to help get her sitting up because I know she is almost there.


She’s also behind on holding toys. She’s very interested in them, she’s just slow to reach out and grab them. Naturally, she’s behind in this area because she didn’t have useful sight for the first 2 1/2 months of her life. I’m very hopeful that therapy will help close the gap so she isn’t so behind here.  
I’m planning on posting more about my physical therapy hopes for Lanie after her appointment.  I’ll also post a list of tools and toys we already use to help in her development.

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31 for 21 Day 25. Lessons in mothering.

Caring for Lanie has brought out the nurturer in Maggie. She’s been giving her baby doll more attention lately.

Feeding your baby is what your belly button is for anyway, right?

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31 for 21 Day 24. Her glasses.

When I first learned that Lanie had congenital cataracts I googled like mad but found very little information about the condition. I had so many questions and there were so few answers from parents who’d gone through this with their newborns because congenital cataracts are rare and this is why I write about Lanie’s eyes so often, so our experiences might be helpful to another family.

I’ve written about this before, that Lanie has to wear glasses or contacts all the time.  Lately, and I think this is because of the drier weather, her eyes have been weepy and a little red so I have left her contacts out more and put her in her glasses.  She normally doesn’t like this but she is becoming more and more okay with wearing them.

I wanted to post some pictures of what her eyes look like without glasses or contacts in. She has absolutely gorgeous eyes but notice how weak her right eye is without correction.

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Her right eye almost always turns in without her glasses or contacts. It only sometimes does this with correction and her eyes are getting stronger and stronger with correction as she grows.

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This is one of my favorites.  She makes glasses look really good.

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She was getting sleepy and it was about time for a nap. Love the thumb sucking.

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The camera on my new phone is about 1000 times better than my old one but, unfortunately, I still can’t seem to get a clear picture of her smiling. She just can’t sit still when she’s happy.

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But blurry or not she so stinking cute I can’t even stand it.

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Filed under: 31 for 21baby wears glassescongenital cataractsDown syndromeLanie

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